Please complete our survey to provide feedback about our book:
Survey link: https://form.typeform.com/to/MsrtAgiC
This book is about a young boy diagnosed with Childhood Cerebral Adrenoleukodystrophy
(CCALD). It describes the family’s journey leading...
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Please complete our survey to provide feedback about our book:
Survey link: https://form.typeform.com/to/MsrtAgiC
This book is about a young boy diagnosed with Childhood Cerebral Adrenoleukodystrophy
(CCALD). It describes the family’s journey leading up to diagnosis and how they cope with
the news. We recommend parents read this book before sharing with their child/children, so they are aware of the content.
The book is a tool to be utilised by families following a diagnosis of CCALD which parents can use in family discussions. It is to support children, to build emotional resilience and openness to talk and ask questions following the diagnosis.
The book was created by our team at Alex, The Leukodystrophy Charity (Alex TLC). Find out how we can support you by visiting our website: www.alextlc.org
The book is free to access electronically. Please do not share this link with anyone else. If you know someone who'd like to access the book, please ask them to contact info
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