New Cumnock News Autumn 2019 ISSUE 2 FREE ERIN’S INSPIRING STORY Cystinosis is a rare recognised her symptoms as that of cystinosis.. genetic disease which Many hospital visits is diagnosed early to Yorkhill in Glasgow were to follow, including in...
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New Cumnock News Autumn 2019 ISSUE 2 FREE ERIN’S INSPIRING STORY Cystinosis is a rare recognised her symptoms as that of cystinosis.. genetic disease which Many hospital visits is diagnosed early to Yorkhill in Glasgow were to follow, including in childhood, usually surgeries to fit Erin with a gastrostomy button to before the age of two. allow medications and There are two or three new cases food to be administered of cystinosis diagnosed each year in and fundoplication surgery the UK. The problem in cystinosis for the tightening of her is an increase in many parts of gullet to help keep food the body of a natural chemical, an and medicines down. Erin amino acid called cystine. There has a large number of are only 200 known sufferers in the medications which she UK including 10-year-old Erin Guild must take every day, from New Cumnock. a variety of liquids and Erin became unwell just before her tablets, much taken orally first birthday and, after numerous now but some which still doct
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